Utah Lyme Disease Alliance
January, 12  2013

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Encompassing the 300+ strains of Borreliosis, including Borrelia Hermsii - Utah's Strain!,
and other Tick-Borne & Insect Co-infections such as;  Babesia, Bartonella, Ehrlichia, Q-Fever; a well known disease in Utah from testing at Dugway Proving Ground!, Rocky Mountain Spotted Fever, Tularemia, Colorado Tick Fever, Mycoplasma and more.
A Multi-Systemic Infectious Disease 
Mark's Lyme Story - Continued
  At the end of August Mark got the flu and so did his Mom. After a week, on September 7, 2009, Dad took them both to the Urgent Care. They had similar symptoms, except Mom’s was turning into the usual nagging cough and Mark just got worse joint symptoms. He even had a rash running up his shin for about a day. Urgent Care said we were fine and not contagious anymore. At that point, I strongly felt and knew something was wrong with Mark. 
  We took Mark to the Chiropractor to help ease his body ache. The Chiropractor said something was wrong and he should be seen by a pediatrician. [We had a very sad and unfortunate visit to an arrogant pediatrician that I will not go into right now] By now it is September 21st, and Mark is feeling worse and being seen by a friend recommended pediatrician, Dr. Jonathan Tew. Dr. Tew talked with Mark and Mom for about 15 minutes. During that time he asked 3 times if our family went camping. We said no 3 times! I said our family goes boating once in awhile. We don’t camp. Then Mark said, hey I did go camping, I went to scout camp in July. Then Mark and I both remembered the huge circular rash on his thigh. The very humble doctor got up, left the room and came back with a book of pictures. Mark and I both pointed to the picture with the rash that looked like his. The doctor said that is a rash from an infected tick bit and the symptoms Mark is displaying are from Lyme Disease. The doctor ordered a blood test for Lyme. He said it may not show positive because Mark was only bit about 8 weeks ago and said even though he has Lyme, there is a 50/50 chance it may never show up on a Lyme test and that is usual for Lyme. The test did come back negative. In the meantime, the same day as the blood test, Mark started taking 200mg of Doxycycline for 21 days. He felt much better on the antibiotics. However, before the meds were finished Mark starting feeling some discomfort again. When the meds were gone we went back the doctor and he recommended Tylenol for discomfort and to possibly seek out treatment for juvenile rheumatoid arthritis and such. We are grateful to Dr. Tew that he followed the book, what he was educated to do and knew about Lyme Disease. However, there is more to Lyme than the basics taught in medical school. [Mark did have a more extensive Lyme test, but he had been on antibiotics for too long and it interfered with the test.] I’m not a doctor, however, I know differently now about treatment, from my personal research on the web, books, and firsthand knowledge from individuals and families who have been inflicted with Lyme Disease for many, many years. 
  I’m thankful that my son did the right thing and showed me the rash. The rash was a red bull’s eye rash with a little white pus like center. Had I been educated, I would have known the white spot was the engorged tick feeding off my son! I feel so sad that I had no clue what it was and how to treat it. Now Mark has chronic Lyme Disease and is experiencing all the terrible symptoms of the disease. 
  I do not want other children to go through all the awful treatments that my son is going through. I don’t want other parents to see their child suffer and not know what to do and to feel responsible for not acting more quickly and accurately. I feel obligated to help others learn about the prevention of tick bits, the removal of ticks if bitten, and the types of treatment for those bitten by infected ticks. 
  The last 4 1/2 years have been a painful journey for Mark and our family. I will continue to research and share my thoughts on Lyme Disease with those that are interested. For more information and education, please visit http://www.lymeutah.com or email: lymeutah@gmail.com        Written by Mom 

Update: A recent member of our Lyme group found an Infectious Disease doctor in California whose daughter has Lyme Disease. I contacted his office and he told me that people in higher elevations like Utah, all the way even to Minnesota, seem to have the strain Borrelia Hermsii. We had Mark tested and he was CDC positive for it. The common name for B. Hermsii is TBRF – Tick-Borne Relapsing Fever. Mark got this at LDS Cub Scout Camp, Utah!

  Lyme Disease is very difficult to treat if not treated within 6-36 hours of being bit. In contrast, viruses are generally very hard to treat and bacteria are easily treatable with antibiotics. However, Borrelia [Lyme Disease] is a very smart bacteria and changes into 3 different forms to protect itself. Watch a 3 min. DVD trailer, Under Our Skin at http://www.underourskin.com/ 
  Spirochete form: 
Very mobile. Spiral/drill capable shape allows penetration into dense tissue and bone. Capable of intracellular infection. Rapidly converts to CWD and cyst form when threatened. 
  Cell Wall Deficient –CWD form: 
Lack of cell wall makes targeting by immune system and antibiotics more difficult. Capable of intracellular infection. Converts Vitamin D to immunosuppressive hormone known as 1,25-D. Causes autoimmunity. Clumps together in dense colonies―inner layers unreachable by antibiotics and immune system. 
  Cyst form: 
Dormant form bacteria are not mobile and do not cause symptoms. Can survive antibiotics, starvation, pH changes, hydrogen peroxide, temperature variation, and most other adverse conditions. Converts back to spirochete form when conditions are favorable.